In Memory of Melisa, Our Daughter, Died May 23, 2015 at the Age of 33 Years

“Melisa was a very sociable and friendly person. She had studied tourism to become a stewardess. She loved to travel and discover other cultures. When traveling, she complained of pain in her ears, which led her to consult our family doctor and an ENT specialist in Quebec who offered her a septoplasty because her nasal septum was deviated.

He never mentioned to Melisa that she would suffer an “intervention on her turbinates.’’  He just told her that he wanted to make more room in her nose so that air would flow more easily. If Melisa had been warned that her turbinates would be operated upon, she would have flatly refused to undergo this mutilation. This operation took place in 2007.  When our daughter retriMelissaeved her operative report, it mentioned “full and dwindling septorhinoplasty of inferior turbinates, bilateral”.

A few months after the procedure, she was not very well, and developed several symptoms which were first: nasal dryness. To clear secretions, she had had to use constant force that became increasingly long and painful and provoked exhaustion and extreme fatigue. Allergies and asthma attacks followed. In the absence of inferior turbinates, the passage of air was too turbulent, the air was not filtered, warmed or  humidified. She also had facial pain in the eyes, ears, throat and recurring headaches. She had pain in the lungs and they felt “frozen”. Melisa drank hot water and ate breadcrumbs to mitigate her chest pain and to have more sodium in the blood. Since 2008, she received allergy injections to offer desensitization.

Obviously, the result was predictable: job loss, poor quality of life, and return to our home. With time, her state and condition of life had gotten progressively worse, so she saw her ENT in September 2013. He found several symptoms that she developed. In October 2013, Melisa was on sick leave of work for empty nose syndrome and was hospitalized urgently in May 2014 for anaphylaxis (severe allergic reaction that can cause death).

In May 2015, our daughter met another ENT and his diagnosis was without a call, stating that Melisa had developed “a total paralysis of the sinus function as tissues and sinuses were dead and there was nothing more to do “. He advised her not to have surgery because her mucosa was severely atrophied. She preferred to know the truth rather than have false hope. She found this otolaryngologist human and listening: he had taken the time to explain things.

Her nose was so dry that it could not assume more normal respiratory functions to such a point that she had to live permanently plugged to an integrated flow humidifier unit received in 2014. Without this machine, our daughter was automatically suffocating as there was too much air coming in, and it was too cold, so her lungs and bronchi where inflamed, causing asthma attacks that could last for hours and hours. She could not live without this machine, or the chest pains were unbearable like if her lungs were in an “ice pack” … horrible! She had been diagnosed empty nose syndrome by this ENT.

Her friend, Carole, suffering from atrophic rhinitis due to a bilateral turbinectomy and cauterization of the inferior turbinates, with whom she communicated and who supported her, asked her what she loved most in life.

Here’s what Melisa replied in writing: “Let’s say that since I am disabled and cloistered at home, plugged to a machine, I try to enjoy the small moments of happiness with my family and I try to find soul peace to be able to leave quietly  in a near future …. I do not have any quality of life, therefore I do not even know what I like; I do not know it because I cannot do anything! The disease weakened me to an extreme level! I try to take care to read, listen to music, read newspapers, be aware of news and take relaxing time thinking of nothing. It feels good. “

Shortly before her death, Melisa wrote “I made a prayer. I asked the Lord to give me a place beside him. I know you expect me and my place is already ready in your kingdom. To live in peace and without pain with you, my Lord. I leave you my soul to dance in a new life full of love forever because health is the greatest wealth in the world. Amen. “

We hope that this pathology, empty nose syndrome, will be recognized by the medical profession because we cannot conceive that such an operation could cause so much suffering and cause irreparable loss of our child.melissa-video-testimony

We also insist that our daughter has died following a long illness on May 23, 2015, in our residence and did not commit suicide as other victims of empty nose syndrome have done.

Her parents that will keep forever Melisa in their hearts.”

Marcelle and Jean-Yves Champion, Canada

 (translated from French)

Melisa’s VIDEO Testimony can be viewed here: