Empty Nose Syndrome: A Medical Horror Story
unnecessary surgery, ens, atrophic rhinitis, medical malpractice, corruption in the medical system
Links
- Chris Martin's Empty Nose Syndrome Blog
- Consumers Union Safe Patient Project
- Doctorblue's Blog: A Cry for Health Care Reform
- Dr. Kerns' Empty Nose Syndrome Lecture
- Empty Nose Syndrome Blog Translated from French into English
- Empty Nose Syndrome Self Help Website
- Empty Nose Syndrome YouTube Videos
- Having Nasal Surgery? Don't You Become An Empty Nose Victim! Book by Chris Martin
- Hers Foundation–Hysterectomy Victims Speak Out
- KevinMD.com
- Patient Safety and Health Care
- Robert's Fight
- Surgery for Empty Nose Syndrome
- The Treatment Trap
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I agree with both of you that I question how “rare” ENS is. I believe it is much less rare than Dr. Das suggested.
I am interested in his idea (first time I have heard it) that nerve sensitivity may be a factor. I’d had chronic fatigue syndrome and fibromyalgia for over 20 years when I had the damaging and unnecessary surgery that resulted in ENS.
Very interesting incite on nerve sensitivity. i have suffered for 22 yrs. I was diagnosed w/major depression long before surgery. I think he’s on to something about pre existing mental illness or nerve sensitivity throughout the body. I did think the % of sufferers was higher. i was off all meds till after surgery and had to take anti depressants and anti anxiolytic meds. I had taken ant depressants before, but never anti anxiolytic meds. Those were the ones that really helped to me to cope, even though they are addictive. However, as 1 doc said, ” Addiction isn’t the issue for you. You need these meds..”
Thank you so much for posting this excellent interview! The only thing I question is how “rare” the problem is. When my symptoms of dryness and “coldness” developed, I quickly learned that ENTs don’t “believe in” the problem, so what is the point of going to them? There are probably a lot of discouraged patients out there.