Empty Nose Syndrome: A Medical Horror Story
unnecessary surgery, ens, atrophic rhinitis, medical malpractice, corruption in the medical system
Links
- Chris Martin's Empty Nose Syndrome Blog
- Consumers Union Safe Patient Project
- Doctorblue's Blog: A Cry for Health Care Reform
- Dr. Kerns' Empty Nose Syndrome Lecture
- Empty Nose Syndrome Blog Translated from French into English
- Empty Nose Syndrome Self Help Website
- Empty Nose Syndrome YouTube Videos
- Having Nasal Surgery? Don't You Become An Empty Nose Victim! Book by Chris Martin
- Hers Foundation–Hysterectomy Victims Speak Out
- KevinMD.com
- Patient Safety and Health Care
- Robert's Fight
- Surgery for Empty Nose Syndrome
- The Treatment Trap
Recent Comments
 | Randall on Empty Nose Syndrome and Suicid… |
 | Bruce John Thompson on Letter From a Suicidal ENS… |
 | petitmoineau38 on Letter From a Suicidal ENS… |
 | Allen S. on Why Are People Killing Themsel… |
 | Martin Finn on Medical Despair Ends in S… |
 | John Deal on Letter From a Suicidal ENS… |
| John Deal on First Stem Cell Therapy for EN… |
 | dlemberg2 on First Stem Cell Therapy for EN… |
 | ens3 on I Am Not Entitled to My F… |
 | cary on I Am Not Entitled to My F… |
 | Anonymous on Caldwell-Luc |
 | cathypogo on Dr. Steven Houser’s Empty Nose… |
 | Karen Rovaris on Dr. Steven Houser’s Empty Nose… |
| Karen Rovaris on Dr. Steven Houser’s Empty Nose… |
 | Jannine Shapiro on First Stem Cell Therapy for EN… |
I agree with both of you that I question how “rare” ENS is. I believe it is much less rare than Dr. Das suggested.
I am interested in his idea (first time I have heard it) that nerve sensitivity may be a factor. I’d had chronic fatigue syndrome and fibromyalgia for over 20 years when I had the damaging and unnecessary surgery that resulted in ENS.
Very interesting incite on nerve sensitivity. i have suffered for 22 yrs. I was diagnosed w/major depression long before surgery. I think he’s on to something about pre existing mental illness or nerve sensitivity throughout the body. I did think the % of sufferers was higher. i was off all meds till after surgery and had to take anti depressants and anti anxiolytic meds. I had taken ant depressants before, but never anti anxiolytic meds. Those were the ones that really helped to me to cope, even though they are addictive. However, as 1 doc said, ” Addiction isn’t the issue for you. You need these meds..”
Thank you so much for posting this excellent interview! The only thing I question is how “rare” the problem is. When my symptoms of dryness and “coldness” developed, I quickly learned that ENTs don’t “believe in” the problem, so what is the point of going to them? There are probably a lot of discouraged patients out there.